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Wednesday, June 29, 2011

Seizure Response Dogs

Are you familiar with these service dogs.  It is amazing to me what you can train dogs to do.  One of our very own staff members went to Georgia to learn how to train these dogs for folks in Arkansas - very cool!!!

Canine Assistants service dogs assist children and adults with physical disabilities or other special needs in a variety of ways. Some of the tasks our dogs perform include turning lights on and off, opening and closing doors, pulling wheelchairs, retrieving dropped objects, summoning help, and providing secure companionship. While all of these functions are vitally important in helping a person obtain greater freedom, perhaps the most impressive gift our dogs provide is social, rather than physical, in nature. The dogs eliminate feelings of fear, isolation, and loneliness felt by their companions. One Canine Assistants recipient made the value of this gift quite clear when asked by a reporter what she liked most about her service dog. Immediately, she responded, "My dog makes my wheelchair disappear."
Most Canine Assistants service dogs are born, raised, and trained at our facility in Milton, Georgia, while some are occasionally adopted from local organizations or breeders. The majority of our service dogs are retrievers, including both goldens and labradors.
 
Like service dogs, companion dogs also serve to assist children and adults with physical disabilities or other special needs. Companion dogs work primarily in a recipient's home, assisting with tasks around the house and more importantly, contributing to the emotional well being of the person.

In addition to service dogs and companion dogs, Canine Assistants also trains and provides seizure response dogs for certain recipients. As with some of our service dogs, these dogs are adopted from various organizations and selectively screened for personality, temperament, and general health. Following general training, seizure response dogs are trained to perform one of the following behaviors, depending on the recipient's need: remain next to the person during the course of a seizure, summon help in a controlled environment, or retrieve a phone prior to the seizure when indicated by the recipient. Certain dogs may even develop the ability to predict and react in advance to an oncoming seizure once they are placed with their recipient.

http://www.canineassistants.org/index.html?nomovie=1

Wednesday, June 22, 2011

Are Clinical Trials Safe?

Sorry it's been over a week since my last blog....had some health issues that kept me out of the office some last week.  All better now :)

I talk to a lot of people that are considering participating or having a loved-one participate in a clinical trial.  Everyone's personal situation is different and you have to make the right decision for YOU! 

Most clinical research is federally regulated with built in safeguards to protect the participants.  We only participate in sponsored research studies at our facility, which means we contract with the pharmaceutical companies developing an investigational medication or device.  We are usually one of many sites participating in either a national or even international study.  The FDA regulates the protocol of the study and the IRB also oversees the trial for the safety of the patients.

There are always benefits/risks that you need to consider before participating:
Benefits

Clinical trials that are well-designed and well-executed are the best approach for eligible participants to:
  • Play an active role in their own health care.
  • Gain access to new research treatments before they are widely available.
  • Obtain expert medical care at leading health care facilities during the trial.
  • Help others by contributing to medical research.
Risks

There are risks to clinical trials.
  • There may be unpleasant, serious or even life-threatening side effects to experimental treatment.
  • The experimental treatment may not be effective for the participant.
  • The protocol may require more of their time and attention than would a non-protocol treatment, including trips to the study site, more treatments, hospital stays or complex dosage requirements.

As I have mentioned before, our site specializes in Neurological diseases such as Epilepsy, Alzheimer's, Parkinson's, MS and Diabetic Neuropathy.  Knowing that there is no current cure for these diseases and having a loved one suffer from Alzheimer's, I would personally put a family member into a clinical trial for these type of progressive diseases.  Same thing with Cancer or any other disease in which a clinical trial might be your best HOPE. 

Of course, there is no guarantee that a clinical trial will make you better, but at the very least you are helping with future research and understanding of these diseases so that we might one day find a cure.  So in a way, you are helping others!

As a site our first priority is our patients safety, and it should be that way at every clinical research facility.  Be sure to ask questions and stay informed - that is your right as a clinical trial participant. 

Are there possible side effects?  Of Course!!!  Are there possible side effects to that medication you are currently taking?  Of Course!!!  There are always risks/side effects to any medication, but do the benefits out-weight the risks?

I don't know if this was helpful or not, so please ask me any questions you might have.  Until next week...

Thursday, June 9, 2011

Outdoor Activities

In our recent newsletter, we discussed outdoor activities that are good for Alzheimer's patients.  I will talk about those in a minute, but I think it is important to stress information about being safe in this extreme heat we are having right now in Arkansas.
     -Try not to go outside during the heat of the day (early morning or late afternoon are best)
     -Drink plenty of water
     -Wear light-weight clothing
     -Limit the time you spend outdoors (1-2 hours MAX)

Spending time outside makes us feel better, so it is important but we need to be smart about it as well!

Here are 10 ideas for outdoor activities this Summer:
1.  Take an early morning or late afternoon stroll.  Studies have shown that simple exercise on a routine basis may help improve mood and decrease anxiety.
2.  Shop at a Farmer's market.  There are numerous crops in season June to September, so a variety of fruits and vegetables, plus seeing colorful foods can lead to better eating habits in those with Alzheimer's.
3.  Spend time on a porch swing.  The rhythmic motion of the swing can be soothing and it is a great time to reminisce.
4.  Visit a local park.  City parks are professionally landscaped with beautiful vegetation, meandering walking trails and even sculptured art.
5.  Bird watch in your backyard.  It only requires binoculars or your own two eyes.  You might want to add bird feeders and birdbaths to attact a great assorment of birds
6.  Enjoy a concert in the park.  You might want to attend one that features music you know the person with Alzhiemer's likes.  Be cautious of crowds.
7.  Explore your city's downtown district.  Instead of getting in your car driving from one shopping center to another, take your errand list downtown and walk from store to store.
8.  Stargaze on a clear night.  You can use a telescope or just the naked eye.  Check your library or the internet for guides on stars, planets and constellations.
9.  Collect seashells.  Whether you live by the sea or only make an annual visit, shell collection can be a quiet, simple activity.  You can incorporate the shells into decorations/crafts for keeping your memories of the beach.
10.  Have a picnic.  A picnic is an easy way to spend time outside, and you can have one anywhere-on your patio, at the park or on the beach. 

I hope these have given you some new ideas on how to spend your time with your loved ones this summer.  If you have other ideas - Please Share Them!

Wednesday, June 1, 2011

What type of doctor is right for you with Epilepsy?

We all know that epilepsy is not a one-type-fits-all condition. Nor are the answers to seizure control. But there are plenty of options out there. Here are just a few (from The Epilepsy Connection)…

Neurologist

The neurologist is a specially trained physician who diagnoses and treats disorders in the nervous system, whether caused by disease or injury. This includes diseases of the brain, spinal cord, nerves, and muscles. Neurologists possess a comprehensive knowledge of the neurological structures of the body, including the cerebral cortex and its division into various lobes and their individual jobs in making the body work as a whole.

Neurologists perform physical examinations to test vision, memory, speech, balance, muscle strength and movement because such functions can be impaired by neurological disorders. They also perform tests such as EEG (electroencephalograph), MRI (magnetic resonance imaging), CAT scan, (computed axial tomography), spinal tap and other diagnostic procedures. Once a diagnosis has been confirmed, the neurologist will determine the best course of treatment. If surgery is needed, the neurologist does not perform the surgery but will monitor the patient.

Behavioral Neurologist

Behavioral neurologists are usually found in centers that focus on one neurological disorder or condition, such as epilepsy. Some hospitals and centers have set up a “cognitive neurology” or “behavioral neurology” program. These are usually outpatient programs that include a team of specialists. These teams typically include a neuropsychologist, a neuropsychiatrist, a clinical social worker, and a clinical psychologist.

They work on such problems as psychogenic seizures which are most likely triggered by emotional stress or trauma. Some people with epilepsy have psychogenic seizures in addition to their epileptic seizures. It’s a legitimate seizure and should be treated that way, but it is not caused by a problem in the brain.

Then there are physiologic non-epileptic seizures which can be triggered by some sort of change in the brain — typically a change in the supply of blood or oxygen rather than electrical activity. It’s important to differentiate a seizure from that of a behavioral disorder, but it’s difficult.

Epileptologist

An epileptologist is a neurologist who has taken at least an additional 2 years of specialized training in epilepsy and usually treats the most difficult epilepsy cases. Epileptologists are significant as experts in seizures and seizure disorders, anticonvulsants, and special situations involving seizures, such as cases in which all treatment intended to stop seizures has failed.

Usually, the setting is a program which has multidisciplinary support such as outpatient and inpatient, medical, surgical and experimental treatments, psychology and psychiatry.

In addition to patient care, epileptologists are often engaged in research, which is far-ranging. The research may include antiepileptic drugs, surgery techniques, genetic factors, biochemical elements, computer modeling, diagnostic tests or a host of other fields.

Neurosurgeon

A neurosurgeon treats people whose seizures cannot be controlled by medication. Epilepsy surgery can benefit patients who have seizures associated with structural brain abnormalities, such as benign brain tumors and malformations of blood vessels, the genetic disorder tuberous sclerosis, and strokes. The goal of epilepsy surgery is to identify an abnormal area of brain cortex from which the seizures originate and remove it without causing any major functional impairment.

Surgery is most commonly performed to treat partial epilepsy, since only one area of the brain is involved. After surgery, many patients will be seizure-free, while others will have better controlled seizures. A few patients may not improve and will need to explore further treatment options.

Improved technology has made it possible to identify more accurately where seizures originate in the brain and advances in surgery have made operative management safer. The benefits of surgery should always be weighed carefully against its risks, because there is no guarantee that it will be successful in controlling seizures.

Pediatric Neurosurgeon

This is a neurosurgeon with specialized training and experience in pediatric epilepsy surgery. However, prior to the surgery, the patient must be evaluated by a team of epileptologists, neuroradiologists, neuropsychologists, and neurosurgeons with specialized training in patients with refractory epilepsy. Most of these teams are in large academic medical centers with affiliations to medical schools. The team tailors the surgery for each child on an individual basis.

Early surgical intervention with a variety of techniques specifically designed to reduce or to eliminate seizure spread or frequency can be performed safely in children with excellent seizure and neurological outcomes.

While the risks of surgery must be considered in any intervention, they should also be weighed against a lifetime of seizures and their impact on the developing brain from a functional and cognitive standpoint.

Psychiatrist

Seizures that are psychological in origin are often called psychogenic (or “faux”) seizures. These seizures are most likely triggered by emotional stress or trauma. And some people with epilepsy have psychogenic seizures in addition to their epileptic seizures.

And depression is no stranger to those with epilepsy. One study stated that 80% of the patients with epilepsy were also diagnosed as having a depressive disorder. Upwards of 60% of these individuals had a history of significant episodes of depression. And 10-32% experience symptoms of anxiety. So psychiatric therapy is often a help in getting over the hurdles.

Nutritionist

It may be worth a full nutritional analysis to determine if you are suffering from deficiencies associated with epilepsy such as Zinc and Magnesium. Other nutrients may also be helpful, including Vitamins B-6 and B-12, Vitamin E and Selenium – all of which have been known to significantly lower seizure rates. AEDs themselves can deplete important nutrients such as Folic Acid, Vitamin D and Calcium.

A nutritionist may suggest The Ketogenic Diet – a high fat, adequate protein, low carbohydrate diet which works by fasting and creating ketones which cause seizures to often lessen or disappear. The Atkins Diet — which is slightly less restrictive than the Ketogenic Diet – is another option. Or you might choose the Modified Atkins Diet (MAD) which is more user-friendly, less restrictive, and as effective as the Ketogenic Diet. And finally, there is The Glutamate-Aspartate Restricted Diet (G.A.R.D) – a life-long elimination diet.

Naturopath

A naturopathic doctor treats the whole person, taking into account the interaction of their physical, mental, and emotional factors in causing a condition. Naturopathic medicine recognizes the importance of the whole person instead of just single organ systems or particular symptoms.

When it comes to epilepsy, naturopathy and a range of related treatment methods may have a good deal to offer, as long as it is coordinated with your neurological care.

Options include: aromatherapy, acupuncture, behavior control, biofeedback, massage, stress management, to name just a few.

Homeopathy

The main argument for treating epilepsy — or any disease — homeopathically is because each patient is different. Though they may be diagnosed with the same disease or disorder, their symptoms are different, as are their responses to treatment and medication. This is why people believe there are many benefits to treating epilepsy based on symptoms rather than the generalized disease. By being able to zero in on exact symptoms which patients are experiencing, it’s believed that homeopathy will have a better chance of treating those specific symptoms.

Alone, homeopathy may not help all cases of epilepsy. But together, with conventional treatment for epilepsy, it’s seen success as a supportive line of treatment. And in cases of drug resistant epilepsy, people often do respond significantly to homeopathy.